Connect provide a small booklet entitled 'Important Information for You and Your Child'
please e-mail us at connectp4p@btconnect.com for your copy.
A small sample of this information is listed below.
PERSON CENTRED PLANNING
Video and Handbook 'Two Way Street' challenges the prejudices
around communication. It also gives practical advice to help
avoid creating unnecessary barriers to communication with
disabled children and young people.
Produced by Triange and NSPCC
Available from NSPCC. Tel: 0116 234 7223
The Transitions Infomation Network - Action 19+
A consortium of organisations concerned with how services are
provided to young disabled adults.
Contact them Tel: 020 7619 7244
or e-mail: bronia.kita@scope.org.uk
Learning Disability Partnership Board
A group overseeing strategic planning of services for disabled people.
They should have a frameworke describing how they are putting
Person Centred Planning into place
e-mail: phillipaharris@sthelens.gov.uk
LEISURE
The Disability Discrimination Act makes it unlawful for your child to
be descriminated against just because of their disability. You
have the right to challenge this and advice is available from
the Disability Rights Commission at www.drc-gb.org.uk
or the Citizen's Advice Bureau at www.adviceguide.org.uk
KidsOut gives grants to fund specially designed toys, terrain buggies,
fun days out, holidays and short breaks for both parents and
disabled children. Their helpline is good at signposting
Tel: 01525 385 232
www.kidsout.org.uk
Special Family Homeswap Register links up households with a
disabled child who are prepared to exchange homes
for a holiday.
Tel: 01752 347 577
www.mywebpage.net/specialfamilies
The Family Fund gives grants towards holidays for families
on low incomes - you need to apply for this.
Tel: 01904 621 115
www.familyfund.org.uk
Both Contact a Family and Family Fund publish useful factsheets
on places to go on holiday, sources of funding, specialist
organisations and planning travel arrangements.
CaF Tel: 0808 808 3555
www.cafamily.org.uk
HOSPITAL STAYS/DISCHARGE
The Children Act 1989 entitles children with ongoing medical or support
needs to an essessment of need. Alongside this you should ask for
an assessment of your needs as a carer. Discharge planning is about putting
together a care package to meet all these needs. Agreeing to who is
responsible for funding nursing care, training, equipment, aids and
adaptations at home can be complex and take time. So it is worth
checking that your child's community nursing team are anticipating
their needs early on. Check with the nursing team in hospital that
your discharge plan is in place.
The government have set out the standard of care that all
children in hospital whould receive. Get a free copy of
'What should a really good hospital look like?' by calling
NHS Response line on: 08701 555 455
USEFUL NUMBERS
Disability Alliance : 020 7247 8776
Family Fund: 0845 130 4542
Contact a Family: 0808 808 3555
Advisory Centre for Education Advice Line: 0808 800 5793
The Tax Credit Helpline: 0845 300 3900
The Benefits Enquiry Line: 0800 88 22 00
Disability Alliance Rights Advice Line: 020 7247 8763
Disability Living Allowance (DLA): 0845 715 3456
Scope CP Helpline: 8080 800 3333
Connect: 01744 731113
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